This month the United States Citizenship and Immigration Services quietly and abruptly ended a deferred action immigration program without any public announcement or public comment period. The program allowed immigrants to reside legally in the United States for humanitarian reasons, such as to receive lifesaving medical treatments that may not exist in their native countries.

This isn’t just a policy change. This is a death sentence for many patients.

Isabel Bueso is one of those patients. Isabel moved here 16 years ago to access treatment for her rare genetic disease, after she was told she wouldn’t live past adolescence. This treatment keeps her alive and has increased her survival by more than a decade. She has been told that she needs to leave the country within 33 days, cutting off her access to treatment. Without treatment her health will quickly deteriorate and ultimately lead to death.